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I know I am late with my June update. I have only one excuse. Thanks to the Hematopoietic Stem Cell Transplantation (HSCT), I have been able to move on with my life. Sure, as they say, once you have had Multiple Sclerosis (MS), your life has probably been shortened by an unknown number of years.
Well guess what? At 59+ years of age, I don’t care! I am no longer medically progressing. I am still chair/scooter bound, but I am also ...
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May has come and it has been a very busy month so far.
I have received, filled out and returned my update to Clinica Ruiz. I am of the hope, others continue to do the same. I realize the importance of responding to their request for information. Since they have started accepting International Patients, their only way of keeping ...
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April has come. It is the week after Easter and I have survived. Patt is visiting and when that happens, it means my son gets to drop off his two for the weekend.
I have continued to progress minimally. So much so for the most part, I need people who ...
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Since my last update, there has been little change physically, or so I had noticed. I am still in the rental in Tampa.
We continue to move ahead on creating our Florida Hacienda. The place for friends and family to visit and unwind for a little while. We have Identified the architect (The same gentleman who built our home here the last time). As a matter of fact, he is ...
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I have had a busy year this year. I have moved back to Florida, having lived here multiple times in the last 20 years. My Wife Patt did not want to leave the last time Feb 2006. It was a career move for me and she relented, unquestionably. We are back now, or at least I am. She will be back soon enough!
A lot of stuff to do to settle in. We are currently renting, but looking. We may buy ...
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It has been a few months since my last update. There has been no real Neurological improvement since December. I can definitely state I am stronger, due to Physical Therapy. We say, “If I am not crawling out afterwards, either he, or me, didn’t do our job!”
I am beginning to get a handle on the actual neurological damage that has occurred. Some, I am still not sure of the possible recovery of some areas. I know I have to be ...
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Well, today I had my last Rituximab infusion. This is usually proceeded by Benadryl and it is added again somewhere during the infusion. Benadryl, affects me by making me somewhat listless. I get home and sleep for a few hours, ergo I am awake. This is a milestone for me. I am of the hope it will kick start my recovery. Not that the immune suppression was holding me back. I am talking metaphorically or “In my head”. Wish me ...
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I have been reluctant to add an update due to very little change physically. In talking with friends and family, they seem to think that is not true. I have made small improvements they notice, not seeing me every day, that I simply don’t notice.
Also there have been a number of visitors come to stay with us for a few days each. My wife and I are known for our hospitality and comfort of friends. It was brought up, I ...
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http://www.telegraph.co.uk/science/2016/06/09/multiple-sclerosis-patients-walking-working-and-skiing-after-gro/
My Lifelong Sister friend found this article.
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I have been going through the expected roller coaster ride after having HSCT. I am definitely no worse as in the degeneration has halted. For those that haven’t quite understood. The is the main purpose of HSCT for us people of the Primary Progressive Multiple Sclerosis (PPMS) persuasion. I know a lot of people are looking for some miraculous recovery to take place. Not in my type. People with PPMS can and often do recover noticeably, but usually no where ...
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