I am going to the same group of Sports Therapist as I had before my procedure. I am talking with them about a new program and starting off probably once a week instead of the three times a week I did before.
I will also be changing the focus of the strengthening areas. Now that I have Put MS into a permanent state of Remission. I refuse, at this time to say cured. For the next few months I will up the exercising regimen as my strength returns. It will be slow and probably not steady. I am a goal oriented person. When I reach a certain milestone, no matter how long it takes, I will then look to increase, or add another area.
With the completion of HSCT, I am no longer in any rush to get it done. Where before I had to work at not degenerating too fast, now my concern is being impatient about my possible gains. There is no way to know which of the neurological paths are permanently damaged, and which may be recoverable.
My job is to be patient and find out. Also to realize it and move on to another area. That will be the hardest part.
NOTE:
I just returned from my Therapist. He noticed immediately that I am doing some things I could not do when last he saw me. These are things I didn’t notice at all! For instance, I stood up from the couch without wobbling. When I was leaving, I stood and put my jacket on without leaning or the instability he would see before. I have just started my therapy. So once again, there is impersonal statements (My Therapist) that I have already brought some improvement to the table.
He gave me some exercises to work into, knowing how I feel about overdoing it. We shall see. We will be starting off with once a week and see what happens!
JAN
2016
About the Author:
A little about myself: I was born Carl Levon Jones in Conway hospital in 1959 to Hazel Elizabeth Jones. I am the third of four children. My mother never married. This today would be normal but in the old days, it was different. Maybe it was the beginning of the change in view. I was raised by my grandparents from the age of 1 when we moved to Maryland. My mother was still a big part of my life, as she and a few sisters had moved to New York to try to make a living instead of the depressed south. I lived and grew up with my grandparents, brother and sister and cousins until I entered the military at 19 years of age. I spent 12 years in the Army learning to be an electronics technician, just to have computers take over the industry. I, therefore, had to relearn electronics with computers being the main focus. No, I am not talking Windows and Microsoft, but Fortran and different flavors of UNIX creating GUIs. I rose through the IT Field from the bottom, to be a Manager at different DOD Contractors. I was married to my wife, Patt in 1981. We have been together ever since, 38yrs. We had one son, Carl Levon Jones II the following year while still serving in the military. I am a man who believes strongly in family and relatives. I am as close to Patt’s family as I am to my own. Closer in some cases. Unfortunately, my rise in IT was interrupted when I contracted the Autoimmune Disease, Multiple Sclerosis in 2012, diagnosed in 2013. I had to leave work in late 2014. I have been dealing with the nerve damage(Neurological) the disease caused. I went to Clinica Ruiz in Puebla, Mexico for a procedure called Hematopoietic Stem Cell Transplantation (HSCT). It is not offered for my type of MS PPMS in the United States. A battle we have been fighting for some time now. This Blog is about my; MS Journey, my thoughts (Poetry) throughout the years, my experiences and my friends and family (Photo Gallery). Hopefully, this Blog will help at least one person in their decision to conquer the MS Beast, and help to get this procedure available in the United States and covered by the Insurance we pay so much for.