I skipped a few moths of updates. I have very little to add as far as improvements. I also have nothing to say as far as degeneration, as there has been none, still. Some may think of frustration and Apathy. I think of Blessings and Happiness. I am posting a few links in lieu of my personal take in their stead.
We continue to entertain. Cooking for friends and relatives is still one of my favorite pastimes. It is also one of the few things I am still able to do, as before. It is just a little more difficult from a scooter, as apposed to on my feet. When planned, I can space out the dishes and with help, set a decent table.
As for my personal outlook, it is very bright. Being in remission is without a doubt a blessing. Unfortunately, I am having issues with it as I am expected to do more than I am physically able. I put pressure on myself of course, as I feel I can do it. This of course, raises the family expectations. I find when I do this, I do not have the same minimal recovery time.
Yes, it is my fault, but I can’t help myself. I have always been a do-it-myself kind of guy, and don’t have the sense to stop when it begins to get complicated. I still do things in twenty minutes; my wife or friends can do in five minutes. It wipes me out for some time as well.
As stated, below are two sites and MS related material. The Mexico entry is where I went for the procedure. There is a video included describing the procedure. Remember, the US medical community continues to hem and haw about utilizing HSCT for MS. They do it for Cancer, (Leukemia and other Autoimmune types of cancer) but still say they have no confidence in its properties treating MS.
DEC
2019
About the Author:
A little about myself: I was born Carl Levon Jones in Conway hospital in 1959 to Hazel Elizabeth Jones. I am the third of four children. My mother never married. This today would be normal but in the old days, it was different. Maybe it was the beginning of the change in view. I was raised by my grandparents from the age of 1 when we moved to Maryland. My mother was still a big part of my life, as she and a few sisters had moved to New York to try to make a living instead of the depressed south. I lived and grew up with my grandparents, brother and sister and cousins until I entered the military at 19 years of age. I spent 12 years in the Army learning to be an electronics technician, just to have computers take over the industry. I, therefore, had to relearn electronics with computers being the main focus. No, I am not talking Windows and Microsoft, but Fortran and different flavors of UNIX creating GUIs. I rose through the IT Field from the bottom, to be a Manager at different DOD Contractors. I was married to my wife, Patt in 1981. We have been together ever since, 38yrs. We had one son, Carl Levon Jones II the following year while still serving in the military. I am a man who believes strongly in family and relatives. I am as close to Patt’s family as I am to my own. Closer in some cases. Unfortunately, my rise in IT was interrupted when I contracted the Autoimmune Disease, Multiple Sclerosis in 2012, diagnosed in 2013. I had to leave work in late 2014. I have been dealing with the nerve damage(Neurological) the disease caused. I went to Clinica Ruiz in Puebla, Mexico for a procedure called Hematopoietic Stem Cell Transplantation (HSCT). It is not offered for my type of MS PPMS in the United States. A battle we have been fighting for some time now. This Blog is about my; MS Journey, my thoughts (Poetry) throughout the years, my experiences and my friends and family (Photo Gallery). Hopefully, this Blog will help at least one person in their decision to conquer the MS Beast, and help to get this procedure available in the United States and covered by the Insurance we pay so much for.