I haven’t posted since April. I know I was religious about my posts monthly for some time. I am afraid life has gotten in the way again! This is something you don’t realize at first. Something you don’t realize for some time. MS had taken that away from me.
A mental thing and very subtle. I started dwelling on whether Patt would be okay. Had I done everything to make sure she was not left weighed down by stuff and could just morn and move on. I feel good about looking forward again. It means I am no longer in that bad place of waiting to die! I don’t know when I crawled out of there, but I am glad to be back among the living.
Patt and I are still getting our new home like we want it. This, six months after moving in. We have let go of so much stuff we no longer used. The major things we want to add, have been identified. Now, it is just a matter of paying for them!
We continue to entertain as often as possible. We have had friends from different places o the east coast. We expect to have many more from different places throughout the country. It is very therapeutic for me. I love to cook for friends. I used to love to cook for Patt. She now has restrictions (Self-imposed) which I don’t have when cooking. My food wouldn’t taste the same if I were to try. I love the reaction of full stomachs and the lazy relaxation afterwards.
I haven’t stated it yet, but I am no worse for wear since my HSCT Procedure in December of 2015. I have had different ailments come to the surface. Some related to getting better and some related to getting old! (Smile) I will always be grateful for tripping over the websites and people who had are the trail blazes of the procedure.
JUN
2019
About the Author:
A little about myself: I was born Carl Levon Jones in Conway hospital in 1959 to Hazel Elizabeth Jones. I am the third of four children. My mother never married. This today would be normal but in the old days, it was different. Maybe it was the beginning of the change in view. I was raised by my grandparents from the age of 1 when we moved to Maryland. My mother was still a big part of my life, as she and a few sisters had moved to New York to try to make a living instead of the depressed south. I lived and grew up with my grandparents, brother and sister and cousins until I entered the military at 19 years of age. I spent 12 years in the Army learning to be an electronics technician, just to have computers take over the industry. I, therefore, had to relearn electronics with computers being the main focus. No, I am not talking Windows and Microsoft, but Fortran and different flavors of UNIX creating GUIs. I rose through the IT Field from the bottom, to be a Manager at different DOD Contractors. I was married to my wife, Patt in 1981. We have been together ever since, 38yrs. We had one son, Carl Levon Jones II the following year while still serving in the military. I am a man who believes strongly in family and relatives. I am as close to Patt’s family as I am to my own. Closer in some cases. Unfortunately, my rise in IT was interrupted when I contracted the Autoimmune Disease, Multiple Sclerosis in 2012, diagnosed in 2013. I had to leave work in late 2014. I have been dealing with the nerve damage(Neurological) the disease caused. I went to Clinica Ruiz in Puebla, Mexico for a procedure called Hematopoietic Stem Cell Transplantation (HSCT). It is not offered for my type of MS PPMS in the United States. A battle we have been fighting for some time now. This Blog is about my; MS Journey, my thoughts (Poetry) throughout the years, my experiences and my friends and family (Photo Gallery). Hopefully, this Blog will help at least one person in their decision to conquer the MS Beast, and help to get this procedure available in the United States and covered by the Insurance we pay so much for.