May has come and it has been a very busy month so far.
I have received, filled out and returned my update to Clinica Ruiz. I am of the hope, others continue to do the same. I realize the importance of responding to their request for information. Since they have started accepting International Patients, their only way of keeping up with the progress of the patients, is to have them respond to the requests they send out. I wanted to start is months update with this “Calling all patients” request. It takes maybe five minutes to complete the survey, yet it is indescribably important to Clinica Ruiz. They need that information to correctly update the data. That having been said, I will move on.
As I have stated in the past, the HSCT procedure was an overwhelming success. By that I mean, there has been no new lesions, nor degenerative affects. I consider myself fortunate. A lot of my fellow HSCT’ers have seen major improvements. I, on the other hand, have not seen those improvements. There is a major reason for this. My type of Multiple Sclerosis Primary Progressive is a very aggressive type. Unlike Relapsing Remitting MS, the Neurological damage is not reversible. I have had to learn to make allowances for this. I also realize, without the procedure, it would be hard to say how far this young man would have succumbed to the degenerative affects of this dangerous Autoimmune Disease.
I am nothing, if not appreciative to have had the opportunity. My procedure was performed on December of 2015. I have been doing Physical Therapy and trying to get my weight up since then. I no longer have to take any of the Disease Modifying Drugs (DMD’s). These medications are in no way a halting the disease. They are Big Pharma’s way of dragging people along. They advertise the drugs. The lobby the drugs. Somehow, they are even able to expedite the FDA approval.
My point is, none of these drugs do anything but retard the progression. Ocrevus, the newest drug and the first DMD touting the ability to act on PPMS. Once again, to retard the progression, not halt it. Neurologists get their kickbacks “Pushing” these drugs and denying the Life Saving HSCT procedure. It is all about Money. Unlike the HIPPACRATIC OATH, most doctors take when they get their license.
There has to be a way for the Autoimmune Disease community to actually have a voice in reference to a known procedure that immediately sends things into remission. It’s funny the way DMD’s can be approved in short order, but the medical procedure, known to work, is taking years and years in the U.S. It is still being considered experimental and the Neurologists refuse to mention it, but is performed often in Mexico, Russia and Germany, to name a few. I am just philosophizing now. Nonetheless,
May, has been a very eventful month, so far. Birthday’s, Mother’s Day; and on the other side Tooth Issues and being a part of a village to raise children. All of these, except the tooth, I actually consider it a blessing to be a part of helping to mentor children. Discussing with the parents what works and what doesn’t. Ways to Modify their approach, that might work better.

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