I have been reluctant to add an update due to very little change physically. In talking with friends and family, they seem to think that is not true. I have made small improvements they notice, not seeing me every day, that I simply don’t notice.
Also there have been a number of visitors come to stay with us for a few days each. My wife and I are known for our hospitality and comfort of friends. It was brought up, I not only held up my end during these visits, but had I not been on the scooter, they would not even have noticed. I am very independent, and love to cook and simply entertain.
I never ran out of energy (During normal hours). Sometimes, people want to stay up all night yakking! I was up every morning fixing breakfast (Bacon, eggs, grits and toast, or pancakes) and had already bought the dinner meats and veggies. Spiced and froze them in Vacuum Saver bags . Anyway we had pork and beef roasts, loins and chops. Of course, burgers, dogs and ribs. Fresh frozen Broccoli, String Beans etc. The wife would also make sure we had plenty of Snow Crab legs for a Crab night for each group. We have never entertained as much as this year, or so many people!
I say all of this, to say, I am definitely doing better, but when looked at singularly, I don’t see it and get frustrated. I will continue to do updates therefore. I have one more Rituximab infusion (Immune suppressive). It is said that I will then possibly start seeing which of my current ailments are neurologically permanent, and which I might recover from. Constantly trying to recover and hopefully it will continue!
Check out these pictures from this years visitors. Much Love To All
Niece & Husband Nephew
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2016
About the Author:
A little about myself: I was born Carl Levon Jones in Conway hospital in 1959 to Hazel Elizabeth Jones. I am the third of four children. My mother never married. This today would be normal but in the old days, it was different. Maybe it was the beginning of the change in view. I was raised by my grandparents from the age of 1 when we moved to Maryland. My mother was still a big part of my life, as she and a few sisters had moved to New York to try to make a living instead of the depressed south. I lived and grew up with my grandparents, brother and sister and cousins until I entered the military at 19 years of age. I spent 12 years in the Army learning to be an electronics technician, just to have computers take over the industry. I, therefore, had to relearn electronics with computers being the main focus. No, I am not talking Windows and Microsoft, but Fortran and different flavors of UNIX creating GUIs. I rose through the IT Field from the bottom, to be a Manager at different DOD Contractors. I was married to my wife, Patt in 1981. We have been together ever since, 38yrs. We had one son, Carl Levon Jones II the following year while still serving in the military. I am a man who believes strongly in family and relatives. I am as close to Patt’s family as I am to my own. Closer in some cases. Unfortunately, my rise in IT was interrupted when I contracted the Autoimmune Disease, Multiple Sclerosis in 2012, diagnosed in 2013. I had to leave work in late 2014. I have been dealing with the nerve damage(Neurological) the disease caused. I went to Clinica Ruiz in Puebla, Mexico for a procedure called Hematopoietic Stem Cell Transplantation (HSCT). It is not offered for my type of MS PPMS in the United States. A battle we have been fighting for some time now. This Blog is about my; MS Journey, my thoughts (Poetry) throughout the years, my experiences and my friends and family (Photo Gallery). Hopefully, this Blog will help at least one person in their decision to conquer the MS Beast, and help to get this procedure available in the United States and covered by the Insurance we pay so much for.