Good Day Folks,
Today was my second Rituximab Infusion. I had no problem with the infusion itself. My energy level afterwards was nil however. The wife, who took me and brought me home, was worried because I was tired and slept a lot.
I felt fine otherwise. I feel fine now 12hrs later. But I must admit, I wish there were no energy ‘ill affects’, but you can’t have everything! Since my last update, there have not been many good things. That having been said, My Physical Therapists (PT’s) are happier than I with the minuscule improvements. I mean I am happy not to be degenerating and am happy to see improvements of any kind. That in and of itself is a plus as only the halting is what you can truly expect. Halt, Remission, Cure. These three words are use a lot and it depends on your comfort level as to which you may be using.
My comfort level will hopefully change in the future, but after on having had the procedure in December, I am currently still at the ‘Halting’ stage, leaning towards ‘Remission’!
My Current status:
I still have issues with balancing and walking. I furniture walk without worrying about falling. I can’t do the walker very long. I am better at climbing stairs but descending them is still a major issue. We, my PT team and I, are current working on my core (Abs) and hamstrings. They are of the belief that this is what is needed to correct my balance, which is not worth a damn at present! I don’t have my next PT until Thursday, Hopefully l will be back to normal by then. Until next time my friends. As Don Cornelius of ‘Soul Train’ always said; Peace, Love, and Soul!
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APR
2016
About the Author:
A little about myself: I was born Carl Levon Jones in Conway hospital in 1959 to Hazel Elizabeth Jones. I am the third of four children. My mother never married. This today would be normal but in the old days, it was different. Maybe it was the beginning of the change in view. I was raised by my grandparents from the age of 1 when we moved to Maryland. My mother was still a big part of my life, as she and a few sisters had moved to New York to try to make a living instead of the depressed south. I lived and grew up with my grandparents, brother and sister and cousins until I entered the military at 19 years of age. I spent 12 years in the Army learning to be an electronics technician, just to have computers take over the industry. I, therefore, had to relearn electronics with computers being the main focus. No, I am not talking Windows and Microsoft, but Fortran and different flavors of UNIX creating GUIs. I rose through the IT Field from the bottom, to be a Manager at different DOD Contractors. I was married to my wife, Patt in 1981. We have been together ever since, 38yrs. We had one son, Carl Levon Jones II the following year while still serving in the military. I am a man who believes strongly in family and relatives. I am as close to Patt’s family as I am to my own. Closer in some cases. Unfortunately, my rise in IT was interrupted when I contracted the Autoimmune Disease, Multiple Sclerosis in 2012, diagnosed in 2013. I had to leave work in late 2014. I have been dealing with the nerve damage(Neurological) the disease caused. I went to Clinica Ruiz in Puebla, Mexico for a procedure called Hematopoietic Stem Cell Transplantation (HSCT). It is not offered for my type of MS PPMS in the United States. A battle we have been fighting for some time now. This Blog is about my; MS Journey, my thoughts (Poetry) throughout the years, my experiences and my friends and family (Photo Gallery). Hopefully, this Blog will help at least one person in their decision to conquer the MS Beast, and help to get this procedure available in the United States and covered by the Insurance we pay so much for.